QUICK UPDATE

Hi my lovely family & friends,

Hope you guys are doing great! We are doing well besides Luis having some pain issues again. I just wanted to share what's been happening at home in the last week or so.

Cousin Alex and Will

Everything was good a few days after chemo. He even had some visits from family a day after- which I must say, he enjoyed very much.

But sometimes even when things are looking good,  and he's feeling great- even then, a better treatment can bring some unpleasant surprises for us.

We're quiet use to these unwelcome surprises. I like to call them obstacles and challenges.   

One surprise was his leg swelled up again last week- and although it's getting better (as I'm writing this), he did spend all last week upstairs in the room.

We didn't want to put too much pressure on the leg so he kept his cute little behind in our bedroom just playing video games.

The second surprise was the pain he used to have back in October (right before the first nerve block procedure), has come back. We were told that this nerve block can last up to several months or even past a year.

It seems it lasted around 4 months for Luis. It might be time for another visit with Dr. Rohman (aka- Dr. feel good.)  
 
I will keep you guys posted on what's next, if there will be another nerve block. It might be a false alarm.

Until next time......have a blessed night. 

BETTER DAYS ARE AHEAD

Hi everyone,

I have a few new updates on Luis and how everything is going with this new treatment.

Yesterday was his usual exam, and chemo followed shortly after. His blood work came back good, and he also gained 8 lbs- (must be those weight gainers I've been making for him.)

This new treatment seems to be a walk in the park compared to the previous one (hooray for that!)

Even with last weeks chemo, he bounced back incredibly well. The next day, we were at the junk yard getting a part for our car.

Let me be the first to say, it's not an easy task to take parts off of junked cars. I'm glad I was with him for the experience of the physical labor. We must've been
working on that adjustment link for an hour. We finally got it off.      

"God is working! And we can finally see some of his work. That's staying in Faith." ;o)

Since the last nerve block procedure, Luis's lower back/rectum pain has lessened. We've been having many opportunities to cut down on his morphine doses here and there. Not every day is the same though. Some days are better than others. And some are even great, going several hours without any morphine.

I encouraging him to take his pain meds as needed- and constantly remind him how great his doing on his own- without pain meds. Things are going great for us.

We've also been using our own methods to help minimize his pain. Such as, taking baths, and laying in there for 30 minutes. Warming up kitchen towels to put on his lower back. I also make him this tea right after his meals that supports healthy digestion.

It's a great feeling to finally see him with less pain- and now with even lesser pain. What a blessing that is.

Until next time.........have a great night!       

 

CHEMO TIME

Hi guys,

Earlier today, we had an appointment with Dr. Neelam and I'd like to say it went well.

His blood work all came back good so she went ahead and put in the order for his chemo.

However, she did mention that she was very concerned about the previous bleeding situation that occured a couple of weeks ago.

She said it's not a good thing that the tumor bursted. Luis immediately interrupted her saying, "That's okay with me- I'm glad it did."

Her reply was, "Well......it's a good thing that it bursted but it's also not a good thing because you can still bleed again or even get an ulcer." (Who wants to think like that?)

Can you imagine if doctors shared ONLY their good thoughts and spared the bad ones from patients? Every patient would look forward to their doctors visits as well as the test results- and not to mention, patients would be expecting to get better.

Although today started out painful for him, things are looking better already. Luis and I are in the infusion room getting his chemo. Hey, just when I told you guys in my last post that his new chemo is for 3 hours. Well, the nurse informed us earlier that it's only for 2 hours.

Luis said, "Even better." And what I say to that is, "Thank you father- (again) for making his treatments easier for us all." God knows how much I waited for a much milder treatment for him.

As I sit here updating you guys, he is sound asleep in his comfy chair snoring- (must be the Benadryl). But I know healing is taking place right now. So for now, I will leave you guys with one last thought:

The healing presence of God is in each one of us, we may not be aware of it, but it's there. ;o)

Sending much love to you all!    
     

SMALL CELEBRATION

Hi everyone,

I have a new update but first, I would like to make a correction with regards to my previous post.

There was a misunderstanding with Luis and his doctor with regards to his new chemo treatment. His chemo is not every Friday for 3 hours- it's a cycle that goes 2 weeks on and 1 week off.  

We're very excited about that week off in between cycles (God heard my prayer and answered.) This gives him more time to focus his attention on life, healing, and ABOVE ALL, perfect health.

I apologize for the long post (again.) I know most of it is me, expressing my thoughts and feelings about everything.

"I blog to express not to impress."

EMERGENCY VISIT

On the 27th of Dec (right after his second nerve block procedure), Here's the link to my post about the first nerve block procedure- in case you haven't read and would like to know.  

Luis experienced some bleeding in his stool. I called Dr. Rahman and asked if it was from the nerve block. He said it shouldn't cause any bleeding and said to keep an eye on it to make sure it doesn't continue.

The same day, we went ahead and went out to eat pizza with the kids. Shortly after we came home, he had another episode. Plus, this time, he threw up blood.

We knew it was time for another E.R. visit. It was past 11:00 pm and because he wasn't having any pain, he decided he will drive himself to the treatment center while I stay home with the kids. We knew they were going to admit him for further testings.  

The next morning, he calls me up to say that Dr. Vashi will be giving him anesthesia to insert a camera down his tummy to see where the bleeding is coming from.   

I got us ready and took a taxi to the hospital to be there before he was done. As we waited patiently for him to return to his room, I couldn't help but sit there and wonder what now. At one point, I started praying out loud asking God, "What does this mean father? Please guide me and let me feel your presence. I need you."

"Prayer is when we speak to God. Intuition is when God speaks to us."

GODS MESSAGE 

As I stepped away to make a few phone calls, I remember passing up a couple of ladies who were chatting. One of the ladies said to the other, "They say 6 months to a year...."

But I didn't hear the last words of that sentence. And as I got closer, I heard her say, "After you pass the 1 and a 1/2 year period, you're good to go."

That was my first message that day.

My next message was in the hospitals parking lot. I was getting out of my car with my youngest- and as I looked over at a cars license plate, it read JESC C ....

I'm sure you can guess what that stands for. ;o)

My last one, was when we were on our way home from the hospital. I kept thinking about Luis and prayed for him as I pictured him in my mind (as I always do), at home, happy, healthy, joyous, and doing the things he loves to do.

As I pull over at a gas station, a gentleman approaches me and hands me a card with a web site on it reading, TheKnowledgeOfGod.com  It also has a paragraph sharing briefly what this web site is about.

We all have messages and feedback that are constantly speaking to us, guiding and directing us in our life!

Only you will know the meaning of the things that come into your life. So you must be alert to what is happening around you so you can ask questions and receive the meaning of the message for you.

I believe this was my feedback from God letting me know through the woman's words at the hospital, the license plate, and the card, that everything's going to be okay.        

OUR CELEBRATION

When Luis came back to the room, he was still out, sound asleep- as I waited for Dr. Vashi to give me the results.

He enters the room and tells me that the tumor is bleeding. But the good news is that the bleeding has stopped.  He also wants to stop giving him the blood thinner shots that I was giving him daily for the swelling and blood clog on his right leg. He said that might've also caused the bleeding.

Guess what? It's been over a week since I haven't given him those shots and the swelling is gone.

"I always expect miracles to appear in my life."

He had a couple of options for us but because Luis is no longer bleeding, these options don't matter to us. I will let the doctors worry about those- as I continue on expecting for things to improve.

When Luis woke up, I was right beside him and the first words I spoke was, "The tumor  is dying babe. It's bleeding." What a great feeling that was just to say.

Luis had tears in his eyes and shared a little story with me about his spiritual connection to God right before they give him the anesthesia.

It went something like this: "I swear babe, when I was downstairs in imaging, Dr. Vashi told me he doesn't know what's going on with me because all my blood work and stool sample came back fine."

"He said I don't really need blood transfusion but he will give it to me because of the blood I lost in my stool- and when I threw up."

"When doctors can't explain, there comes God. I was even allowed to leave my rosary on while they did the procedure on me."

I said to him, "That's great! So you had Jesus with you the whole time too?" He just smiled at me as he tried to hold himself from crying of joy. :o)

He also told me that I was his angel and my spoken words were exactly what he needed to hear. That just lifted up my spirit even higher. We were both happy and celebrating from the inside.


Until next time.......know that none us have it easy. We all have a story to tell. But guess what? You're the author and get to decide how the story goes. Well, I'm deciding how this goes.  

     

GOD IS GUIDING US

Hi everyone,

Here's the updates on Friday's doctors appointment as promised. Thanks for being patient. :o)

This time, I decided not to go with him, but he still was kind enough to keep me informed through out the day with everything that was happening around him.

FIELD TRIP

A couple of weeks ago my son's teacher (Ms. Chang) asked me if I can chaperone on a field trip with her class. At first, I told her I can't because of Luis's appointments and chemo the same day. But things changed when my little guy Luis- (aka- Sito) came to me a few days later and said he really wanted me to go.

 

Let me just say I'm glad I chose to go on this trip. I understand my kids need me too. In more ways than one.

Luis also said he was happy I wasn't there this time. He said there was a lot of bad vibes around him. The doctors visit turned out to be a big surprise- as Luis explained to me.

DOCTORS VISIT

 "God is guiding us."  

A few days ago his right leg swelled up and we weren't sure if he was getting chemo. We did however know that it was one of those crazy side effects of chemo.

According to Luis, Dr. Neelam examined his right leg, then mentioned his cancer markers (which went up to 10,000 from 7,000). Then she immediately sends him downstairs to imaging- and wants a scan of his abs and right leg to see if he has a blood clog.

His abs came back fine but they did find a blood clog in his right leg. The doc went ahead and put him on a 7 day regimen called Fondaparinux Sodium Solution.

I have to inject him with this for 7 days- and the swelling & blood clog should disappear.

As Luis is calling me to keep me informed, he tells me:

"Oh my God babe! My doctor, her nurses, and everyone downstairs in imaging are freaking out. Some are telling me how dangerous this blood clog is and what can also happen to my heart."

Now mind you, I'm on the phone with him and he's calm as he can be through out the conversation. This is how I replied:

"I know babe. That's part of their job. They don't really know any other way to react to your situation. "Lets just let them do their part and we'll do ours."  

When he called me and told me all this I did wish I was there beside him, supporting him spiritually while spreading good vibe. But I knew it wasn't meant to be- (obviously.) I also knew that Luis does not (and will
not) let fear and these negative statements by others intimidate him. 

I've seen him overcome many obstacles and challenges in the past- and this is just another one of those.

NEW THERAPY

Dr. Neelam decided it was time to move on to plan B. It's a new chemo therapy given to him every Friday for 3 hours in the infusion room. It's less aggressive than the other one.

He did have his first dose this past Friday. And boy was it easier for him to bounce back than the other one.

  "I'm not hoping for a miracle. I'm making one."

MY THOUGHTS

CHRISTMAS DECORATION IN FRONT OF A HOUSE

We all have our moments of uncertainty, and yes, this was one of those moments where I was a bit taken by surprise. Was I worried? Absolutely not. I have too much FAITH in Luis, his will, and God's work in all this.

Yes, his will has a lot to do with the outcome of his situation. You certainly don't expect God to do everything for you now do you? Of course not.

God will work miracles in our lives, but we still have to do our part.

Luis knows and understands that when we discipline our minds, we DO NOT let fear, doubt and false impressions of the world to intimidate and push us around. He knows he's in control. And he also knows that God's peace fills his mind- and it fills your mind too.

That's health for the new mind for you by the way ;o)

Until next time...I want to wish each one of you and your families a wonderful Christmas. May God continue to bless you with peace, love, and joy.

Some of you I will be celebrating with real soon (can't wait.) While others, I will keep in touch and connect on line. Much love to you all!

GODS WILL

Hi everyone,

Here's my update on how Luis is doing with the nerve block, how his doctors visit went on Monday- and a couple of things he's been up to lately.

Since my last post, I noticed- (with regards to the nerve block) a few bad nights, and stomach pain with heart burn. But then again, these symptoms do come and go. And so I don't give any attention to them. 
These of course, are just shadows in my mind.

Now what I really noticed lately that stood out and over shadowed the negatives, is this constant desire to fix cars (his passion).

"I'm not blind, I ONLY see what matters- and I'm not deaf, I ONLY hear what counts.

HIS WILL

"Six days after chemo, he used his (what we all have) God giving will to fix the head gasket on his dad's car. He had some help from his dad and little brother Jimmy- (it was a big job.) It took them a day and a half to finish, but at least they were blessed with pleasant weather. 

I  was so happy for him that he actually had the desire to do the work. I know how much he misses working on cars ever since he started chemo again in 2010. He actually told me he enjoyed fixing his dad's car.

This is exactly how we want to keep moving along in our journey. Life has got to be lived. And Luis is living his life, expressing himself, and doing what he loves to do. Gods will is the will of life for us all. And our life is always seeking expression through each one of us as Harmony, Health, Love, Peace, Joy, and perfection.    

 "There's no force on earth more powerful than the WILL TO LIVE- so why fight for things you want to achieve?"

NEW HABIT     

Recently, he also picked up a new habit, cooking- and began experimenting with new recipes. So for Thanksgiving, (of course) he decided to make a turkey for the first time.

We stayed home on Thanksgiving and had his parents and sister with her family over for dinner. And with the turkey being so delicious, and full of flavor- we made our own feast. Not bad for a first timer.

NERVE BLOCK

During the times he was fixing cars, cooking, and doing all the things he loves doing, he didn't feel the need to rely on morphine as much as he used to. Keep in mind, all we did was minimize his pain meds- (advised by Dr. Rohman.) To be honest, the pain has lessened- and it's obvious when I see him fixing cars in our back yard- and taking trips to the junk yard for parts for my car. The nerve block is working. Maybe not 100%, but its working.

 While the dose for his pain meds decreased, my dose of love for him has increased. And it just keeps growing for me. The man has inspired me to love like I've never loved before. He's been my biggest inspiration.

A PICTURE I BOUGHT. IT SPOKE TO ME.

FAITH GETS RESULTS

The nurse assessment also went well on Monday. His blood work came back good, and he managed to gain 6.5 lbs. within 2 weeks. I'm sure a couple of those lbs. came from the turkey. YAY for him!    

Even though we didn't see Dr. Neelam.

Remember on my previous post, I mentioned that she wanted to see us after 2 chemo cycles- so she can check to see if his cancer markers have gone down? Well, this Monday was his second cycle. Our next appointment with her will be on Dec 16th. 

I will have an update on the results for that before Christmas- for those of you who are interested. :o)  

Until next time..........know that Gods will for you is the will of life

FEAR NOT- BELIEVE ONLY

Hi everyone,

Here's what has happened since my last post. But first, I want to apologies for the long post (again). I can't help myself. I love giving details and all the positives that come with them. I hope you guys enjoy reading my story as much as I enjoy sharing it.

By the way, for those of you who took an interest in liking blog- and decided to follow us through our journey- thank you so very much! You guys have no idea how much that means to me.  

You guys are my inspiration to keep sharing!  

If there's anything I can do to make my blog better, please do share! I'd love to hear from you!

THE FOLLOW UP

On Monday the 7th, we met with Dr.Neelam for a follow up. And although Luis was scheduled for chemo right after, he wasn't feeling up for it. He was having pain issues the last few days, and was lacking sleep.

I told him the last call was certainly up to him. We can always reschedule if rest was needed. Then, I went ahead and scheduled a last minute meet with Dr. Rahman- (the feel good doctor), to give Luis some reassurance that all is well.

As we're finishing up the conversation with Neelam, she mentioned that his blood work came back good. But they never checked for his cancer markers- so we will have to wait for that. She also didn't want to give him chemo today because a CT Scan was way past due- and went ahead to schedule one for Tuesday the 8th. We were glad about the no chemo!  That actually worked on our behalf.

POSITIVE FEEDBACK 

Shortly after Neelam, we met with Dr. Rahman regarding the pain Luis was having. He wanted to know why he was still having so much stomach pains even after the nerve block procedure. The doc said its only been 11 days since the procedure was done. And told him it can take from 14 to 21 days before the block sets.

Before that, he will have some bad days, and told him....."Just be patient." "You're heading in the right direction Luis." "It will get better, and things will improve."

"I absolutely love this doctor!" "He's so positive and optimistic about helping his patients feel better......."What a gift that is." 

I must say, later that night, Luis did seem more confident about the nerve block- and the expectations of feeling better from it. I also mentioned to him that I do recall Dr. Rahman saying, it can take up to 21 days (in some cases), for the block to finally set.

CT SCAN RESULTS

We were called back to meet with Dr. Neelam for the test results. Here's the report: There is suggestion of progression of the invasive carcinoma of the head of the pancreas.

She said the report wasn't clear enough for her. So she went back to the radiologist and pushed him to be more specific. She wanted numbers as to the size of the tumor by comparing to July 18th, 2011 scan. He couldn't be specific and suggested that it grew .2 cm.

She also mentioned, his liver is clear. Even that dark spot that was once there is no longer there. Near the biliary tube drainage also looks good. His stomach area (where he's having the pain) looks fine and suggested that the pain can be caused by gas build up.

Dr. Neelam then told us that she was worried and concerned prior to the CT Scan. But after the report came back, she was no longer worried. Luis said she seemed more at ease (as a doctor). 

However, she said his cancer markers came back up 4700- (which is to high.) And would like to give him 2 more chemo cycles- and then check the markers again to see if they've gone down.   

MY THOUGHTS         

To me, markers, numbers, scans, x rays, and blood work don't mean anything. I don't live my life from what I see in the outside world- I live from within. But I don't mind sharing these results, as I understand the mass population do go by what they see and hear.

The truth is, our senses do laugh and challenge us everyday- and say it can't be done. It's impossible. The cancer is incurable. It's hopeless. This is the outside world for us- it denies our desires. Who wants to live like that? I don't. 

This is why I suspend my senses and direct my mind to give attention to only what is lovely and of good report. My new mind focuses on health, peace, and harmony.

If I live by the real world, Luis wouldn't be here right now. Think about it! The real world tells me my husband's cancer is incurable. Back in December of 08, it told me that he had 6 months to a year to live. And he's going on 3 years next month.

It also told me to quit my job and get my priorities in order because the odds are against him. Know that odds don't mean anything. Your INTENTION is what matters. What do you intend today? I intend, as I have since December of 08, to be a believer in Luis's healing.  And I know, with God, all things are possible.

I did quit my job though, but to take great care of him. Being his caregiver has been the greatest gift ever. It has taught me so much.   

I believe God has already healed Luis. We're just going through the process until the day breaks and the shadows flee away.

Until next time........never give up, never listen to no, never listen to can't!

NEW PROCEDURE

Hi everyone,

Today, I'm here to share the new big thing that we've been so enthusiastic about. But before I do, I'd like to remind myself and the rest of you again of my purpose with creating this blog.

The purpose has (and always will be) to keep family and friends informed of what's happening with Luis's treatments- and how we're dealing with it. I am not here to change anyone's way of thinking- nor their beliefs about themselves and life. I'm only here to share our personal experience.

As a writer, and owner of this blog, my desire is to continue writing and sharing only positive stories and uplifting words abut our journey. I live by my quotes everyday and believe in the importance of spreading only the good with the world.

"When you keep your eyes on God, there's no evil in your pathway."   

THE NEW BIG THING

Back in July, 2011, Cancer Treatment Centers of America began offering a wonderful new procedure in the pain management department. It's called Nerve Block Therapies. There's two, but I will only share the one called celiac plexus block- which is commonly used to treat stomach cancer pain.

This procedure aims to reduce chronic pain in the upper abdomen. It blocks the sensation of pain in the bundle of nerves in and around the stomach, liver, pancreas, gallbladder, kidneys, and bowel.

Many of you know that Luis has been dealing with pain since his early stages of diagnosis. I personally don't remember a day that's gone by without him experiencing some level of pain. The pain has been a major issue for him. And although he's taken many different pain medications, they've never really taken the pain away completely. 

Even for me, driving the car with him while he's on the passenger side has been a huge challenge. Trying to dodge pot holes and always worried about the bumps ahead.

But while he was in the hospital the last time, Dr. Rahman (an anesthesiologist) came by and offered him the option to try the Nerve Block procedure. He began explaining to us how it works:

First he injects a temporary, local anesthetic into the area where the affected nerves are to determine if he experiences any pain relief. If the temporary block works, Dr. Rahman will administer a neurolytic solution (pain killing medication) to the same area 24 hours later. This long-term Nerve Block will destroy the nerves, thereby preventing you from feeling pain in that region of the abdomen.

DR. FEEL GOOD

Dr. Rahman- (referred by me as, Dr. Feel good) said he doesn't have magic or anything like that. And he can't cure Luis's cancer either. But he can block the nerves which send the signal to his brain reminding him of pain.

By doing so, Luis can began enjoying family life once again. He can now look forward to doing things that the body recognizes as normal- without the constant thought about pain. He will also be able to do normal stuff like lay on his stomach, stand up straight (without slouching due to pain).

And best of all, he wont be checking the time and thinking, "when's the next medication due." Because pain wont be there (specifically in his mind). Over all, he can began to expect his situation to improve as well.

On Oct, 27th, Luis went and had the Nerve Block procedure done. And according to him, he is feeling beautiful. But according to Dr. Feel Good, the full affects of the block can take up to 14 days to work completely. Which means he can still have bad days or even bad hours in a day.  And that's why he advised Luis not to completely get rid of his other pain medications- but rather, minimize them. And he has.  

But once the nerve is completely broken, he can expect for it to last up to weeks or even several months at a time.         

We are so thankful for the Neuroanesthesiology department at the treatment center. This has been a huge break through for someone that's gone through so much pain. It has truly been a blessing from God. And so has Dr. Rahman and his team of experts. 

Until next time.......I want to wish each and everyone of you all the blessings of life.
                       

GOD IS IN THE TOUGH STUFF

Hi everyone,

I'm here at the treatment center and just wanted to give a quick update on Luis. He was suppose to come home today but things changed when Dr. Vashi came by to visit with us.

If you guys remember on my previous post I mentioned that Luis's J tube was leaking. We didn't bother to address the issue because we still had to deal with the biliary tube. Now that the biliary tube is fixed- and things are working smoothly, the time seemed perfect to bring it up again.

J TUBE ISSUE
 
The surgery for the J tube was back in March, 2011. And although we didn't use it consistently, (as prescribed by the doctor) it managed to wear out and get a hole in it some how. Don't get me wrong, it did help some what.  Especially when he was losing a lot of weight and throwing up- (due from the blockage in his tummy).

The J tubes purpose was to allow him to get all the nutrients he needed so he can continue on getting chemo. But since healing is taking place at all times (in the body), you can be sure your current situation will also improve.               

"If you're one of those people who has an open and positive mindset- then you can expect to have nothing but the best outcome for your situation." "That's an optimist way of life."

BIG DECISION

Dr. Vashi suggested for us to replace the J tube because Luis might still need it during and after chemo. But even those times he really didn't use it. There's actually several boxes of Peptamen cans at our home just sitting there. He's been eating by mouth for a long time now- (and keeping food down too). When I get a chance, I'm going to donate those cans to the treatment center. 

As soon as Dr. Sanchez (his surgeon) left the room, we began chatting. We started thinking about what would be the BEST decision for us. And since the surgery requires the same steps as before (which is to cut him open), we decided to get rid of the tube completely.

The surgery is tomorrow morning and Luis is very happy and optimistic about the whole procedure. The truth is, he's always disliked the tube feeding idea. So getting rid of it will be a blessing. Now, that area on his body can also begin to heal on its own.

Before I say goodbye, I want to acknowledge a very special and sweet house keeper by the name of Erna.

Yesterday she came by Luis's room and gave him a rosary. She said that she gives those out to all her patients. She told him to squeeze it tight and pray.    

Me and Luis were Like, WOW! It's amazing how God works- and uses people and things in your life to let you know that all is well.

The signs are all around us. We just have to open up our minds and pay attention.

Until next time................remain positive and optimistic no matter what challenges you may be facing.

BACK @ THE TREATMENT CENTER

Hi everyone,

It's been about three weeks since his bile duct surgery and I must say, other than the pain issue (near the wound), he was doing good at home. The only concern was to get his pain under control. But when his nurse came over yesterday to change the bandage, things took a turn on a different direction.

Yesterday, I had to bring him to the treatment center because the pain became worse, right after his nurse left our home. And then he noticed his J tube was leaking also.

His nurse (Bryan) came by yesterday to change the bandage. We thought he must have disturbed the whole wound because right after, the pain worsened. That bandage was really glued to his skin and looked pretty painful as Brian removed it.

So as we're waiting in the hospital room, we realize the bile duct bag had no liquid in it. And soon learned that the biliary tube that was connected to his bile duct had moved from its original location. They kept him over night, and told us he would need to go under again to put the tube back where it should be. At this point his in so much pain that all I can say to him is that he's in good care and God is guiding us in every step. And he's also blessing the hands of the nurses and doctors.

They just called me and told me that everything is okay- and all they had to do is pull the tube out, straighten it, and push it back in. Yes! God is working miracles in my life everyday. And I am grateful.

He's on his way back upstairs, so I will let you guys go. Sending much blessings to you all. :o) 
   

ANOTHER SURGERY

Hi guys,

I wasn't planning on updating my blog any time soon, but someone @ CancerCenter.com  inquired about it- and I immediately became inspired to do so. Amazing how that works ha? We sometimes look for positive support, feedback and inspiration from family (when times are hard) and end up receiving from someone we never even met or seen.  So it doesn't matter where all that comes from, as long as it blesses and fills your heart with joy.   

The worst thing you can do to someone who's going through hard times is to offer advice. But the best thing you can do is to listen and encourage. "Thank you for your encouragement. Who ever you are."

Last weeks chemo didn't happen due to his liver enzymes being to high. As his blood work came back they immediately told us he had to do an ultrasound to see what's causing such a high level. Although he was happy about no chemo that week, we were still wondering what's next for us.

WHAT THEY FOUND

Later we met with Dr. Vashi for the ultrasound results. And learned that they found an obstruction in his bile duct, near the stem- (the stem they placed in him back in Feb, 2011). Which means he needs another surgery called "Biliary drainage tube". A tube that they place through his skin (on his right side) into the bile duct to drain the bile fluid that will not empty into his intestines.

We understood clearly that without this procedure he can't go further with chemo. We just looked at each other and said, "Well, it's gotta get done. So let's do it." (tough times won't break us, they will make us.) Later on we also went and prayed by ourselves. But is there a special time and place for prayer? Nope. Anytime and anyplace.

AFTER SURGERY

The surgery went well but the blood work came back positive for an infection in his blood. So he stayed in the hospital for two days. They had him on antibiotic but they weren't sure if it's the right one for that specific bug- and didn't want to send us home with the wrong antibiotic. I totally understand their concern- and trust their cancer care completely.

He's finally home now, doing good, and trying to get adjusted to the new tube and bag on his side. Although I can't feel his pain, I do see all that he goes through. Everyday he thrives and survives to live. And he appreciates his life a whole lot (as he tells me). I think those who appreciate life the most are those who have experienced the most pain. And I know all that he's gone through just to survive. I love him for his strength and will to live. 

"DON'T STOP BELIEVING." A quote I live by everyday. I will never ever stop believing in Luis's healing. That's why I wear that shirt so much. :o)

Until next time.....believe in someone who is ill, and they will believe in themselves. 

"That's one of the most important things for caregivers and family members to understand. Especially in the beginning of a patients diagnosis."          .

CAN'T SLEEP FEELING GOOD

Hi guys,

I know I just recently updated on Luis's doctor visit but I couldn't sleep and felt the desire to share- share the great day (and night) we had today.  I am feeling the good from within and I am grateful.

As I'm laying down next to him, I hear him snoring and sleeping in such peace. (oh how I love these nights.) It was just Saturday night were we both didn't sleep at all because he kept waking up vomiting with pain. Now mind you, he was out with his parents all day Saturday (feeling okay though.) Plus, he was still hooked up to his chemo pump.

Sunday he slept in all day and night. He said he don't even remember his parents being at our house visiting. And I couldn't barely get him out of bed to go to the treatment center and get disconnected from his chemo pump.    

But today, he did rest most of the day while I was out with the kids taking care of some stuff. It was hectic for me- but coming home to see him feeling better (considering his chemo just ended Sunday night) made it worth all my effort.  And I was praising the day. Not even giving any thoughts to what we went through Saturday night.

And our day ended with this type of conversation: He tells me, "You have no idea how thankful I am for feeling this good." "It feels so good to feel good." "I haven't felt this good in a long time- especially right after chemo."

Until next time........NEVER let a day go by without looking for the good.

Good night and sweet dreams to you all.     

                    

LUIS'S UPDATE

Hi guys,

It's that time again that comes with chemo- the constant hiccups, moodiness, being a chatter box and all the rest that's needed for healing- (just to name a few.) These will continue on for the next week or so.

Just want to give a quick update on his visit with Dr. Neelam yesterday.

Our visit was focused more on his nutrition and less on numbers (love these types of conversations!)

You'll also notice that its been three weeks since his last chemo so he's actually a week late. But it's okay because we had to take care of some personal things last week Friday- so it worked out on our behalf.       

DOCTORS VISIT

Dr. Neelam did an exam on him before chemo and said all the blood work results look good- while the markers continue to go down. We chatted more about his nutrition and when's his next BIG scan coming up.
She wanted us to continue to use the tube feeding and said it would only help him.

In my previous blog post I mentioned that Luis is eating more solid foods now days and less of the tube feeding. But we're actually going to start using it during the day instead of at night. He doesn't like to get hooked up at night because while he's asleep, the pump fills his belly up with a lot of air. This causes him a lot of discomfort, bloating and cramps- (not good).

Since he had a scan done back in July, she said we don't need one for another three months. So the next scan will be in October. And as always, I will continue to keep you guys updated and informed of any new changes.

Until next time.......................................much love to you all :o)    
 

PROGRESS UPDATE

Hi guys,

Just wanted to give an update on Luis's progress as well as share my thoughts on the symptom which came back to visit us. Plus, some incredible things he still manages to do during his treatments.

As I write this blog, I'm walking in nature with my kids and nephews at a nearby park trail. Which brings me to a warm feeling of love and joy that I constantly receive from God. I remain patient, faithful and trusting in his work. I thank him for the moment that my family is here visiting us from Utah. And I thank him for the positive support I continue to receive from them all. There's always something to be thankful for.       

AFTER AND DURING CHEMO

Last weeks chemo really kicked his butt. And although he's been resting a lot lately, he still managed to fix his dad's car (with help from dad and brother Jimmy) and did some things around the house that he loves doing. There was a couple of vomiting issues after chemo but nothing compared to before.

One of the things that's been happening is we've been cutting down on his J tube feeding- (unconsciously) since he's been eating more solid foods these days. And that's something new since his surgery in March. Now he gets to eat most of his calories from food- (as he should).

He does still get stomach pains but we just keep looking at the big picture. We see all the good that's surrounding us and refuse to dwell on the obstacles.

Before chemo, he also had an opportunity to barbeque chicken wings for us. And while doing so, he decided to chop some wood (which I thought he was crazy) and made a bomb fire in the back yard. He did pay the price the very next day- as he went to work.

But the nurse did say she was very impressed with the physical labor he's done. She said it's important for all cancer patients to still stay active during treatments. But did advise him not to chop wood next time. As that type of labor can take a lot of energy out of a patient.  

But all in all, what matters to me is that he continues to make use of his WILL. His God giving will to live. Does what he desires to do, when he feels like doing it. And never allowing cancer to steal his life.

Until next time, be thankful for what you have and you'll keep getting more things to be thankful for. :o)     

THE PROCESS OF HEALING

Hello there!

Many of you may know by now that I like to call our current situation a process called healing (and never as a fight.) Being a caregiver to Luis has taught me a lot over the years. And although we're still going through it, I would still ask many questions. Such as, "What is it that heals?" "And where does this healing power come from?" Finding the answers, has allowed me to help support him mentally and spiritually- not just physically. 

This blog post was actually inspired through visiting the site CancerCompass.com. There, I've met some incredible patients and caregivers. Everyday, these great people inspire me with their strength and courage. And they remind me to keep pushing forward with Luis.

I will explain how I became aware of this healing power (which we all poses.) But first, in order to understand, one must be willing to put their old beliefs aside- (you know, the ones you were brought up believing) and be open minded to this new way of thinking. This is where my blog title "Health For The New Mind" truly gets its meaning from. New mind = new beliefs. Beliefs that will inspire you to become an optimist.

HOW YOUR MIND WORKS 

(For those who don't know). There's 2 levels of your mind. The conscious- (rational) and the subconscious- (irrational). You think with your conscious mind. And what ever you think about sinks down into your subconscious mind. Your subconscious mind is the seed of your emotions and your creative mind. If you think good, good will follow. If you think evil, evil will follow. Once the subconscious mind accepts an idea, it begins to execute it. You must remember though, the subconscious mind works for good and bad ideas the same.

ONE UNIVERSAL HEALING POWER

In the past, I've visited many links to sites with groups of people who offer different methods and therapies to patients with cancer. I noticed that they all claim that because their theory produces results, it's therefore the correct one. I realized then, that they must be something common to them all. Specifically the subconscious mind. And the one process of healing is Faith. 

All of these groups, such as, psychiatrist, psychologist, chiropractor, doctors and all the churches are using the #1 universal power in the subconscious mind. And they all claim the healings are due to their theory. But the one process of ALL healing is a positive mental attitude or a way of thinking called faith.

A patients healing is due to their confident expectancy that acts as a powerful suggestion to the subconscious mind releasing its healing strength. One patient doesn't heal by a different power than another. Yes, s/he may have their own method but there's only one process of healing and that's FAITH.

 

BIBLICAL TERMS ON THE USE OF THE SUBCONSCIOUS POWERS

For inspiration, I sometimes read passages from the bible and follow Dr. Joseph Murphy's teachings. He was a new thought minister in divine science and religious science. Some of his teachings also come from inspired writers in the bible- (as mentioned below).

The prime condition which Jesus consisted upon was faith. Over and over again you read in the bible,  "According to your faith is it done unto you." If you plant a seed in the ground, you have faith it will grow. And trusting the laws of growth,  you know that the seed will come forth after its kind. Faith (as mentioned in the bible) is a way of thinking, an attitude of mind. Knowing that the idea you completely accept in your conscious mind will find its way into your subconscious mind- and made manifest. 

A classical instance of bible technique: Matthew 9:28-30  When he entered the house, the blind men approached him, and Jesus said to them, "Do you believe that I can do this?" "Yes, Lord," they answered him. Then he touched their eyes, saying, "Let it be done for you according to your Faith!" And their eyes were opened. Then Jesus warned them sternly,  "Be sure that no one finds out!"   

The words, "Let it be done for you according to your Faith." You can see that Jesus was actually appealing to the cooperation of the subconscious mind of the blind men. Their Faith was their expectancy and their inner feeling that something incredible was going to happen. And that their prayer will be answered- and it was.

Faith is when you accept something as true, while you reasoning senses deny it. It's also important to ignore the rational conscious mind and always have an attitude of complete trust on the inner power of your subconscious mind. :o)        

Until next time................choose the method (or theory) you prefer and you can be sure, if you have faith you will get results.                  

IT PAYS TO BE AN OPTIMIST :o)

Hi guys,

Not much has happened since my last post other than another round of chemo on Friday the 12th- and some good blood work results again.

He's still connected to the chemo pump- (at the moment) and we're suppose to go back to the infusion room tomorrow night so the nurse can disconnect him. Then he's free for another 2 weeks. The blood work shows yet again that his liver enzymes are continuing to drop.  Also his bilirubin (not sure what it is)  has also dropped in count.

He's no longer having any vomiting issues due from the side affects of chemo and very minimum nausea too. Believe me, that's a HUGE blessing on it's own. Some other side affects (like drinking cold beverages after chemo) has also been minimized.              

I think those small changes- (and great news) continue to come from having the expectations for things to change- (for the better.)  The pessimist complains about the wind; the optimist expects it to change; the realist adjusts the sails. ~Arthur Ward~   Do you agree?  

Until next time.......have a blessed night (my definition of blessed) Blessed = Faith, Believe, Happiness, Love & Joy       

SOME NEW RESULTS ARE IN

Hello my lovely family and friends,

 

As you guys may already know, last week Luis had a ct scan done while visiting the E.R. for some pain issues. And although he checked out okay, the ct scan showed something in the liver. So Dr.Neelam still wanted to go over the results with us before chemo on Monday the 25th.

At that point, I didn't ALLOW my mind to worry or even begin to entertain that thought. Luis did also mention that he wasn't worried about it- (which is what matters first and for most.) At that moment, my spiritual side spoke. I began thinking we've gone too far to turn around and question God now. And I thought, he's actually the one that's been taking of our worries so we don't have to. :o)

WITH FAITH- GOD SPEAKS


The ct scan results were in and Dr. Neelam came to meet us. She mentioned that they weren't sure what they saw in his liver. But she was very concerned and  sent him to get an MRI. After a few more positive feedbacks, she said, "I don't want you to do chemo today until I get the results back. If the results show that there's a tumor growth than we need to change it up and start a new chemo." She went and gave him a sheet with all the information about the new chemo and ALL its side effects.

You know what he did with that sheet? Garbage- that's right. First, the guy hasn't even taken the MRI and she's already trying to tell him what they're planning for him. And second, the worst thing (in my opinion) any patient, caregiver or even a family member can do (to make things worst) is to read and fill their MINDS with ALL the negative down falls about a drug. 

My belief is that if we're going to choose a specific treatment, to help cure ourself from an illness- than we must also trust and BELIEVE that it's going to help. Filling our minds with negative information- (the side effects of a drug for instance) doesn't help us to be an optimist. For me, keeping my mind closed to any outside distractions like that keeps me positive and optimistic about his healing.

MRI RESULTS

We left the treatment center with the idea that he's not getting chemo today because the doc has to wait for the results to come back. Luis didn't mind at all. In fact, he said, "I'm going home to rest." As he rested, I went to Jewel for some groceries with my daughter Lulu.

As I'm pacing my self in the aisles and enjoying the shopping, my cell phone rings- it's Dr. Neelam's nurse Amy. She tells me, "Erika, the results came back  NEGATIVE for definite hepatic metastases." "Tell Luis Dr. Neelam wants him back in the infusion room right away for cycle 3 of round 6 chemo."

I tell you guys, that phone call lifted my spirit so high that I felt like I was floating. My feel good mood went from high to higher within seconds. It was that gratifying.         

The CT appearance of the liver is related to
heterogeneous fatty infiltration.  And so, all is well.      

 

And here's the additional positive feedbacks that I mentioned above:

• CEA markers keep going down 
• He gained 6 lbs.
• The pancreas looks stable
• And he's also cutting down on his tube feeding from 5 cans to 4 to even 3 on some days- now that his tummy's tolerating more solid foods.

Now, I know his pet scan is way past over due from what we were told. And I've been mentioning it on a few of my posts. But I'm not in a hurry for that right now. Let it drag if it needs to- I've just been given plenty of blessings- and I KNOW, with FAITH, the best is yet to come. :o)

Until next time.......never allow your mind to accept any negative suggestion- if you do, reject it immediately!
                                                          

NO CHEMO FRIDAY

Hi guys,

I'm here to give a quick update and let everyone know that Luis didn't do chemo this week due to a mistake on my part. I also mentioned on my previous post that he was having some pain issues near his J-tube and wanted to get it checked out. And although I was against it, he still persisted on visiting the ER last Monday.

NO CHEMO AND YET ANOTHER ER VISIT

I messed up on his chemo schedule so I had to reschedule for Monday the 25th. When ever I make his appointments I always leave the sheet in a drawer in my kitchen. But for some reason when I took the sheet out this morning, it ended up being an old one from June 24th. And I accidently mixed up the new date with the old one.

Last week Monday he decided (on his own) to go to the ER. They did the usual- blood work and a ct scan. Keep in mind also that we've gone to the ER twice for the same issue- and they found nothing. Both times were alsoafter his chemo. But this time around everything came back ok except that the ER doctor said he saw something in his liver- but weren't sure what it was.

This is also the reason why he hasn't gotten any ct/pet scan done. I think it has something to do with insurance polocies.

After I made his new appointment, the care management team called me back to say that Dr. Neelam wanted to go over the ct scan results more in depth on Monday before chemo. I will update here about how the conversation went. :o)

Right now, the good news is that he's glad I messed up his schedule because he's still having some pain and didn't feel like dealing with chemo. I guess it worked out for his benefit. And for me, it just means I will have more of the Luis I enjoy. And the kids will also have the father they love being around- without any of the stupid side effects that come with chemo. And yes, I'm still a true BELIEVER that the patient still has some control over their experience.

If you guys have a question or want to share your thoughts please leave a comment and I will reply.

Until next time........stay positive and optimistics

Have a fantastic weekend *HUGS* :o)

ALWAYS BEING OPTIMISTIC

Hi guys,

I'm back again and just thought I'd give you guys a quick update on Luis's progress. It's been over a week since his last chemo therapy and I'm glad to say that things are looking pretty amazing since his last cycle. Not sure what exactly changed this time around and don't really want to feed to much into it either. Although it could've been the 4 week break that he insisted to have. I will tell you guys this! No vomitting or nausea this time around. YAY! And I will let you guys know this week if he's having his petscan- with the results following after.

He did complain about some pain near his J-tube area right after chemo and also off and on since then. He also, at one point, wanted to go into the ER while we were staying at my moms- (due to a power out from the storm) I insisted for him to take morphine for the pain.

In the past, he's complained of pain in the area a couple of times and when we did go in, they checked him, did a ct scan and turned out it was nothing. I noticed that right after chemo, sometimes, he has pains in different areas in his body which come and go. He's got good days then ok then all of a sudden AMAZING days.

As far as everything else, well we're just enjoying summer barbeques with family and friends just like the rest of you guys.

I will keep you guys posted more of the good stuff later this week! :o)

DAY AFTER CHEMO

Hi guys,

Well, it's Monday the 11th and it's not the usual Monday (the day after chemo) here at home. By this time, Luis would be on the couch in front of the tv falling in and out of sleep- my favorite moments I love to call (HEALING time). You know, 46 hours of chemo does wear the body out.

Today, we actually had another storm and no power again. So what did we do? Well, first, I went to the treatment center for my second training with my youngest son. Then came home, packed up all the food from the fridge and headed to my mom's place with the kids- while Luis stayed home resting. My parents are out of town so it works out beautiful for all of us.

When I got back, I gave him his medicine/supplements with some breakfast and all of us headed back to my moms. He was exhausted and it was hard to get him out of the bed but I knew he would be better at my moms.

Now we're all relaxed with the ac on while he's resting/sleeping- (aka, healing) and I still believe life is beautiful. :o)