The day has arrived and Luis is finally at home! We feel so blessed to have made it through this situation! We also feel extremely thankful for everyones great support, prayers & personal visits to the hospital. You guys have truly made a difference- so thank you- to you all!
For those of you who don't know yet, the surgery was to insert a jejunostomy (j-tube) in his intestinal tract, (below his stomach). This tube provides a way for Luis to receive liquid food because he was unable to eat by mouth due to a blockage. This allows him to receive the nutrition and water he needs to maintain his weight and strength. Right now, he needs 1250 ml (5 cans) pumped into him over 14 hours. His dietitian also encourages him to continue to get in full liquids throughout the day for even more calories and hydration. Now mind you, this feeding tube is only necessary for a short time while his receiving his chemo therapy. As he progresses in his treatments and gets stronger, he'll be decreasing the amount of the the liquid food and increasing his solid food. The picture below can give you guys an idea of some of the things the tube feeding comes with. The home tube feeding will take some adjustment on our part but it's so flexible to his schedule- and its also portable-so he can take it with him.
Well, it's been a long two weeks since the surgery and I can honestly tell you guys that this experience alone has given me a better understanding about patience. I soon learned that my patience does rest on the faith I have in Luis, the doctors & in God. When there was that one week delay from him coming home because (according to the surgeon, Dr. Sanchez), the valve was not functioning yet. He said it can take a few weeks before it starts working properly. So all he really needed was more time! We went ahead and BELIEVED in the doctor while still doing our part- remaining positive, calm and patient during his recovery.
You see, good is underneath every single thing that appears to be negative. If we can know that good is all there is, (including in a negative situation) then we'll see a negative situation transform into all good. Most of us keep the good away from ourselves because we right away label something as bad, and then, of course that becomes our reality. Well, I chose to see the good in this situation.
until next time.................choose to see the good in your situation- no matter how bad things appear to be!
Thursday, March 17, 2011
Thursday, March 10, 2011
WHY THE DELAY!
Just when I go home Tuesday night, make some time to clean and finally finish laundry- I arrive Wednesday morning at the Treatment Center to find out that Luis won't be coming home this afternoon. Later that morning, he went downstairs for an xray on his tummy to find out that he still had some internal swollness from the surgery. They also found a lot of fluid that didn't make it's way out. So there went the tube back in his nose! But don't worry- according to him, he didn't feel a thing (thank GOD)! No wonder why he had so much pain in his tummy.
That morning the nurse had also wrote (DECREASE PAIN) on the board as a goal for Luis to achieve for the day. Well as you can see I changed it to
(FEEL BETTER). I wanted him to focus on what he wants to achieve (which is to feel better) and not what he doesn't want! It's more detailed than that but he gets the idea! So after they had his pain under control, he finally managed to sleep as I stayed beside him pushing his drug button every 10 minutes!
Fast forwarding to today! We met with one of his doctors (Dr. Vashi) in the hallway and he told us that (besides the swellness) the surgery that's intended to by pass his stomach's lower intestines is not functioning- (just yet)! and that it can take up to 3 weeks before it starts to do it's job.
I think sometimes the doctors may even push the patients recovery time a bit to fast. Any how, his diet is back to chewing ice and popsicles (for now) as well as the Total Parentnatal Nutrition (TPN) bags and the high calorie nutritional meals for nourishing and strengthening the body.
So for now- we'll just keep waiting patiently and confidently for his recovery so he can come home!
until next time...................be healthy
That morning the nurse had also wrote (DECREASE PAIN) on the board as a goal for Luis to achieve for the day. Well as you can see I changed it to
(FEEL BETTER). I wanted him to focus on what he wants to achieve (which is to feel better) and not what he doesn't want! It's more detailed than that but he gets the idea! So after they had his pain under control, he finally managed to sleep as I stayed beside him pushing his drug button every 10 minutes!
Fast forwarding to today! We met with one of his doctors (Dr. Vashi) in the hallway and he told us that (besides the swellness) the surgery that's intended to by pass his stomach's lower intestines is not functioning- (just yet)! and that it can take up to 3 weeks before it starts to do it's job.
I think sometimes the doctors may even push the patients recovery time a bit to fast. Any how, his diet is back to chewing ice and popsicles (for now) as well as the Total Parentnatal Nutrition (TPN) bags and the high calorie nutritional meals for nourishing and strengthening the body.
So for now- we'll just keep waiting patiently and confidently for his recovery so he can come home!
until next time...................be healthy
Tuesday, March 8, 2011
COMING HOME!
I'm very excited to say that Luis is coming home tomorrow! Yesterday they've started him on a clear liquid diet- he was doing so well (no nausau or vomitting) that this afternoon they also moved him up to liquid diet- (creamy soups, custard, pudding, ice cream, vegetable juice etc... He's still receiving the 12 hour TPN (Total Parenetral Nutrition) bag through his port as well as the High calorie meals pumped in his tummy. His doing amazing- (I must say)! I've been trained on preparing the TPN bag but not with the high calorie meals. Keep in mind also that these two are only temporary! We're still just awakening the digestive system- and it's coming around slowly and faithfully (just as expected)! The tube in his nose finally came out yesterday. The nurse asked him how does it feel without it- and he said like night and day! I was so happy for him (as you can imagine)! We're moving forward everyone- and remaining patient!
Well, I must cut it short now, Sito is bugging me to sleep next to him (you know, scary cat)!
until next time..............choose happiness! When you choose happiness, then you attract all the happy things as well.
Well, I must cut it short now, Sito is bugging me to sleep next to him (you know, scary cat)!
until next time..............choose happiness! When you choose happiness, then you attract all the happy things as well.
Saturday, March 5, 2011
PATIENCE REST ON FAITH- IN OURSELVES, IN OTHERS, AND IN GOD
As of right now, Luis will be staying @ the treatment center possibly for the weekend! Since yesterday, they've been giving him these high calorie nutrition meals pumped through his stomach tube as well as the Total Parentetal Nutrition bags (1300 calories + vitamins included) accessed through his port. They're checking him every few hours for nausau. His doing very well with these meals (no nausau). So I'm not sure why they're dragging on letting him come home. But it's okay- his in good hands. Besides, I think his beginning to enjoy these pretty nurses taking care of his needs (I don't though). Lol!
But this morning- I was thinking as I waited for the elevator to arrive. I felt a sense of impatience coming through me- I just wanted the stupid elevator to hurry up already so I can go upstairs to be with Luis. Then it hit me! I continued on thinking about the ONLY positive word and experience that I'd like to remember from UIC hospital in Dec of 08- was the word PATIENCE.
It started when we first arrived to UIC. As we sat and waited for 4 1/2 hours to be seen- we became hungry. I went to the nurses kitchen to warm up some food- and a nurse walked in and asked me what kind of CANcer does my husband have. I replied and said (Pancreatic). As she stared at me with big eyes, she called out the word PATIENCE- and said to me (lots of PATIENCE). I had no idea (then) that this word would have such a powerful meaning to me today! But as I understand now- patience is the faculty in the human soul that allows us to accomplish our mission without allowing ourselves to be distracted from our purpose by obstacles (such as this one). And only when we're patient under ALL circumstances can we maintain harmony.
I'm glad that through all this, GOD continues to strengthen me in all my ways!
until next time............................think health
But this morning- I was thinking as I waited for the elevator to arrive. I felt a sense of impatience coming through me- I just wanted the stupid elevator to hurry up already so I can go upstairs to be with Luis. Then it hit me! I continued on thinking about the ONLY positive word and experience that I'd like to remember from UIC hospital in Dec of 08- was the word PATIENCE.
It started when we first arrived to UIC. As we sat and waited for 4 1/2 hours to be seen- we became hungry. I went to the nurses kitchen to warm up some food- and a nurse walked in and asked me what kind of CANcer does my husband have. I replied and said (Pancreatic). As she stared at me with big eyes, she called out the word PATIENCE- and said to me (lots of PATIENCE). I had no idea (then) that this word would have such a powerful meaning to me today! But as I understand now- patience is the faculty in the human soul that allows us to accomplish our mission without allowing ourselves to be distracted from our purpose by obstacles (such as this one). And only when we're patient under ALL circumstances can we maintain harmony.
I'm glad that through all this, GOD continues to strengthen me in all my ways!
until next time............................think health
Thursday, March 3, 2011
IT'S GOING TO BE A BEAUTIFUL DAY!
I woke up this morning and had the chance to chat with hubby for a bit. Not to my surprise, (lol) said that he had the best night since Tuesday and slept like a baby! That alone (ofcourse) began my beautiful morning- (loved it). He will be coming home to my care Friday. But before that, I will be given some training on certain things that we need to follow. Am I worried? ABSOLUTELY NOT! I can't afford to worry and I refuse to make time for it either. Let me just clarify something here before I go further in my blogs (and you choose to follow)! You will not read any DRAMA, SORROW, PAIN, ANGER, FEAR, DOUBT OR WORRY from my blogs. We're not attracted to negativity and we certainly don't walk around feeling sorry for ourselves or carry bad vibes. We don't need sympathy or to feel sorry for- We're not a victim, wer're creators- just like everyone of you! Here, you will get to feel our JOY, HAPPINESS, LOVE, FAITH, PATIENCE AND PEACE! And you will get to walk with us as we continue to progress upward. What I wish to accomplish here is an opportunity to share our positive energy, thoughts, feelings and experiences with the circumstance we're facing. So get your shoes ready because we're going to learn how to dance in the rain and not sit back and wait for the storm to pass!
until next time..........................be healthy and have a WONDERFUL weekend spend with loved ones!
until next time..........................be healthy and have a WONDERFUL weekend spend with loved ones!
Tuesday, March 1, 2011
BRING IT!
Back in Dec 2008 I was given the worst news of my life- Your husband (Luis) has 6 months to a year to live! I allowed the doctors to instill fear, doubt and worry in me and accepted their verdict. But as I grew and learned, I can honestly say that GOD has truly blessed us with this unique circumstance (I will share my thoughts on that later). Today, Luis gets his 3rd surgery (port surgery included in that) since he started back up with chemo therapy on Aug 2010. And I'm full of FAITH and confidence in his healing. I actually had beautiful dreams last night with me, him, & his family all having a good time laughing and being @ piece. I woke up this morning and the first words that popped in my thoughts were BRING IT! The surgery (not sure what they call it and not care for it either) will get rid of a blockage in his cute little tummy. So the GREAT news (we believe) is that he will no longer have issues eating solid foods as well as keeping it down. This surgery is the next step for us and we're both VERY confident about it- As we continue to progress and focus on achieving greater health. Well, that's all for now but I will keep posting his progress and our experience after his surgery- so come back if you'd like! until next time..........be healthy and take care.
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